The numbers behind the work families do
The work of managing healthcare falls on patients and their families, and most of it is invisible until you are doing it. These are the numbers behind that: how many people are carrying it, how much help goes unclaimed, and what it costs when the coordination fails. Every figure below links to its source.
Who is carrying the work
Family caregiving is the largest unpaid workforce in American healthcare. Most of the people doing it never chose the role and were never shown how.
Help that goes unclaimed
Programs exist for food, utilities, and healthcare costs, and large numbers of eligible older adults never enroll in them. The obstacle is usually the paperwork and not knowing the program exists, which is precisely the kind of problem an advocate is able to solve.
What care costs when it is not coordinated
When staying at home stops working, the costs land on families directly. These are the numbers families usually see for the first time at the worst possible moment, and they are why the work of keeping someone stable at home matters.
Talk to someone who can take this on
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Covered by Medicare. If you have a supplemental policy (Medigap) or Medicaid, your standard coinsurance may be fully covered.